Tag Archives: Trigeminal Neuralgia

Can the lancinating pain of Trigeminal Neuralgia (TN) really be ‘cured’ by correcting jaw alignment?

Isn’t TN only managed with medications or resort to (irreversible and risky) neuro-surgery? That is exactly what someone suffering with these symptoms would hear from their physicians – Primary care, neurologists or neurosurgeons.

It may sound far-fetched but it is true. Disabling, lancinating (stabbing) facial pain, commonly diagnosed as TN could be resolved in most cases, by precisely correcting jaw alignment through Physiological Neuromuscular Dentistry (PNMD).

Is it just a coincidence or is it the treatment paradigm that is making the difference? Is the real difference, our paradigm, our understanding of the origin of these symptoms? Is it nerve injury or increased input in to the Trigeminal nerve from structural discrepancy that causes these stabbing, shocking facial pain symptoms?

These three cases of physician diagnosed TN were completely resolved of TN symptoms in a matter of days through PNMD. Each case is slightly different but the common denominator is the PNMD approach of diagnosing the discrepancy.

Mary Beth https://youtu.be/V8RaZ65pxO4
Pansy https://youtu.be/nQLQDOLnOl0

 

Angie Symptoms https://youtu.be/EtZ68pDJYx0  Angie Solution  https://youtu.be/BGvvAzSJRfQ

 

What exactly  is TN? Trigeminal neuralgia is a disorder that causes debilitating nerve pain in the jaw area that can feel like a lighting strike. The accepted medical explanation is that it is due to damage to the Trigeminal nerve’s myelin sheath. As such, TN symptoms can only be managed with medications for life or when that fails resort to irreversible and risky neurosurgical procedures including nerve surgery or brain surgery.

I have copied and pasted authoritative information from the National Institutes of Health that describes the medical paradigm of this condition. https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Trigeminal-Neuralgia-Fact-Sheet  Underlines were added for emphasis. My comments are italicized...

Trigeminal neuralgia (TN), also called tic douloureux, is a chronic pain condition that affects the trigeminal or 5th cranial nerve……

Another synonym is suicide disease. If there is no end in sight for this debilitating pain, it is understandable that some sufferers would choose to end their lives instead.

TN is a form of neuropathic pain (pain associated with nerve injury or nerve lesion.) The typical or “classic” form of the disorder (called “Type 1” or TN1) causes extreme, sporadic, sudden burning or shock-like facial pain that lasts anywhere from a few seconds to as long as two minutes per episode. These attacks can occur in quick succession, in volleys lasting as long as two hours. The “atypical” form of the disorder (called “Type 2” or TN2), is characterized by constant aching, burning, stabbing pain of somewhat lower intensity than Type 1. Both forms of pain may occur in the same person, sometimes at the same time. The intensity of pain can be physically and mentally incapacitating.
TN can be caused by a blood vessel pressing on the trigeminal nerve as it exits the brain stem. This compression causes the wearing away or damage to the protective coating around the nerve (the myelin sheath).

This is a widely accepted ‘theory’ similar to many other theories in medicine about migraine, fibromyalgia etc. But if this theory is correct, then everyone that gets Micro Vascular Decompression surgery to place a protective cover over the nerve would get better. That is not the case. Or the surgeon would find the sheath damaged by a vessel each time. That is not the case either. Or if the myelin sheath of this nerve is missing as seen on MRI, then that patient would have symptoms. That is not true either. So, this is a theory with many holes in it.

Pain varies, depending on the type of TN, and may range from sudden, severe, and stabbing to a more constant, aching, burning sensation. The intense flashes of pain can be triggered by vibration or contact with the cheek (such as when shaving, washing the face, or applying makeup), brushing teeth, eating, drinking, talking, or being exposed to the wind. The pain may affect a small area of the face or may spread. Bouts of pain rarely occur at night, when the affected individual is sleeping.

As listed above, some additional stimulation of the Trigeminal nerve usually triggers pain. During sleep, most people are relaxed and slack jawed resulting in less stimulation of the Trigeminal nerve. So, this points to any solution that could LESSEN the stimulation of the Trigeminal nerve as a viable treatment. Does it not?

TN diagnosis is based primarily on the person’s history and description of symptoms, along with results from physical and neurological examinations. Other disorders that cause facial pain should be ruled out before TN is diagnosed.

This is very similar to the other “diagnoses of exclusion (DOE)” such as Migraine, Fibromyalgia etc. Diagnosis is based primarily on what the patient subjectively reports. All the medical tests are done to ‘rule out’ another cause for the symptom – that they know of – and hence confirm their initial diagnosis. Because most physicians including specialists are simply unaware of the Physiologic Neuro Muscular Dental approach (PNMD), poor jaw / neck alignment is NOT ruled out as a cause of the symptoms. Dentists are trained to repair teeth and gums. They usually look at where the teeth fit together (occlusion) but not the physiologic alignment of the jaws as a dentist trained in PNMD does. So simply consulting with any dentist ‘to rule out jaw alignment problems’ will not be helpful either.

A diagnosis of classic trigeminal neuralgia may be supported by an individual’s positive response to a short course of an antiseizure medication. Diagnosis of TN2 is more complex and difficult but tends to be supported by a positive response to low doses of tricyclic antidepressant medications (such as amitriptyline and nortriptyline), similar to other neuropathic pain diagnoses.

Drugs that reduce ALL nervous system activity is similar to a dimmer switch on the entire house. They do reduce the Trigeminal input in to the brain as well. But do so indiscriminately, with side effects and only for a few hours. So, if the symptoms get reduced with these drugs, how does THAT PROVE that the myelin sheath damage is the real cause of the symptoms? Is that logical to come to that conclusion and give no end in sight for patients besides taking drugs for the rest of their lives?

Eventually, if medication fails to relieve pain or produces intolerable side effects such as cognitive disturbances, memory loss, excess fatigue, bone marrow suppression, or allergy, then surgical treatment may be indicated. Since TN is a progressive disorder that often becomes resistant to medication over time, individuals often seek surgical treatment. ………
Some degree of facial numbness is expected after many of these procedures, and TN will often return even if the procedure is initially successful. Depending on the procedure, other surgical risks include hearing loss, balance problems, leaking of the cerebrospinal fluid (the fluid that bathes the brain and spinal cord), infection, anesthesia dolorosa (a combination of surface numbness and deep burning pain), and stroke, although the latter is rare.

So when the drugs are not enough, do invasive, irreversible and risky surgeries that do not work all the time is the only option left? Why not even consider a non-invasive and completely reversible treatment that actually lessens the input in to the Trigeminal nerve by correcting the structural discrepancy of the jaw / neck alignment that is necessitating constant over-work of this nerve to compensate for that structural discrepancy? THAT in a nutshell, is PNMD. THAT can only be described as a CURE as evidenced by many cases including the three examples given earlier.

SUNCT Headache Case History

Michelle has suffered with SUNCT, Migraine and many other symptoms of TMD. This is her story:
Fairly long and detailed!
Michelle Mitchell
March, 2010

Mid-August of 2006, I scheduled my routine dental check-up which resulted with having a cavity filled the next week. After having the cavity repaired, my tooth was hurting more and more. Early Sunday morning I was awakened by the worst pain I had ever experienced. It felt like my head was going to explode, my right eye was droopy, my vision was blurred, and I had an odd sensation on the right side of my head to my arm. I knew I should go to the hospital, but I resisted. My vision continued to vary in my right eye. The following day, my head was better, but still in pain. My tooth pain was also increasing. My doctor was out of town, so I went to a local doctor whom ordered an MRI. Following the MRI, I returned to my dentist because my tooth pain continued to rise. My dentist explained that the actual tooth hurting was not the tooth that had been filled, and if the tooth didn’t quit hurting, I may need to have a root canal. When the MRI results came in, I followed up with my regular physician. He explained that no abnormalities were noted. By this point, the tooth pain had expanded to facial pain…shooting, stabbing, etc. Based on my presentation of symptoms, my family doctor felt that I probably had trigeminal neuralgia and migraines; I was started on Tegretol and prednisone. I experienced minimal improvement while on the medication, so my physician referred me to a neurologist.
October, 2006, my neurologist stated that he felt I had trigeminal nerve pain, but not classic trigeminal neuralgia. I was placed on Neurontin to assist with the facial/eye pain, and later Topamax due to the increase in frequency and intensity of migraines. As time passed, my headaches, eye pain, and facial pain increased. Cold, wind, and touch set my face off in pain. I had increasing pain in and around my right eye. I experienced facial spasms, in which my jaw would draw to the side for hours. Jaw joint pain and facial spasms increased. Due to the presentation of symptoms, my neurologist suspected I had a disorder of the jaw joint and referred me to an oral surgeon in Feb/March of 2007. Due to my training as a speech/language pathologist, I also believed I had a disorder of the jaw joint. I knew my presentation of symptoms was not typical for trigeminal neuralgia or migraines. The oral surgeon disagreed; he stated I was at risk for jaw joint problems due to my closed bite, but at the time I did not have any problems and referred me to an orthodontist to be fitted for a splint to wear at night to help reduce pain. The orthodontist determined that he didn’t know what was contributing to the facial/jaw joint pain, but that a splint would not provide me with the pain relief I was searching for. Upon discussing these findings with my neurologist, he determined that I needed to be referred to a different neurologist; if it wasn’t a jaw joint disorder, he was unsure what it was. He expressed that I was experiencing blepharospasms and possibly a type of facial dystonia, due to the eye and facial spasms, but that would need to be further evaluated. I questioned having my facial muscle and nerves evaluated. I was told that he was unsure of where that could be done, but possibly at the Mayo Clinic.
My neurologist attempted to get me into the Mayo Clinic, but was unsuccessful. So, I was referred to a neurologist in Kansas City. My second neurologist immediately diagnosed me with SUNCT Syndrome (Short-Lasting Neuralgia Form Headaches with Conjunctival Injection and Tearing) and migraines. He was confident that the shooting, stabbing, and electrical pains in my face, eye, head, and temple were due to the SUNCT. He also felt that the eye spasms and drooping were the result of SUNCT. As time passed I was placed on a multitude of medications…neorontin, lyrica, anti-convulsion medications, blood pressure medications, anti-depression medications, etc. with little success. As the months passed, the facial spasms, pain, head, and then neck pain increased. I questioned my neurologist if something else could be occurring. I again asked about the possibility of jaw joint issues. I also questioned having nerve and muscle functioning testing completed on my face. He was adamant that that did not need to be done and that I was experiencing atypical facial pain, migraines, that was it, and to continue his protocol of treatment. He expressed that I needed to understand that some people are disabled by migraines and to continue his trial of medications. I was not going to accept that I was going to be disabled at the age 30. And, by this point (June, 2007), I did feel nearly disabled. I was homebound, with not being able to walk outside or up/down my stairs in my own home. For most of the summer I was too ill to care for my own children, unable to get out of bed for days at a time due to the pain, and equilibrium problems. I would stumble and was unable to walk upright when the pain was flared. I didn’t know how I would be able to start work again after summer break. Searching on the internet, I found a TMJ specialist out of state. I read information on the website, read the doctor’s research, and felt it would be beneficial to be evaluated by him.
Upon evaluation by the TMJ specialist (September, 2007), my jaw was dislocated and locked. The specialist was able to successfully unlock my jaw. I was fitted with a splint to wear around the clock for 2 months and then at night to assist with keeping my jaw from dislocating. It continued to dislocate frequently, but not to the extent it was initially. Later, the specialist diagnosed me with splenius capitis muscle syndrome and temporal tendonitis. I had radiofrequency procedures completed to assist with pain reduction and healing of the nerves. The splenius capitis procedure immediately eliminated the constant pain I was feeling in the parietal area. This was such a relief; I felt like I would somehow now be able to manage. My facial and jaw joint pain, however, continued to increase. An MRI of the jaw joints was later ordered due to the continued increase in pain; however, the results indicated no jaw joint abnormalities.
Throughout this experience I trialed chiropractic treatment, acupuncture, and myofascial release therapies. I do believe that I benefited from the acupuncture. The relief, although, was not long lasting.
Later, I followed up and shared the TMJ information with now my third neurologist (January, 2008). The neurologist agreed that I had SUNCT syndrome. I continued on Topamax and trialed other medications. Again, I experienced limited success with pain reduction/migraine frequency. As time passed, my eye/temple pain and eye spasms increased. My neurologist referred me to a neurologist whom specialized in dystonia. I believe this was one of my most frustrating experiences. He asked me a variety of questions, and everytime I talked about “pain”, he informed me that my regular neurologist would address that. I did not realize as a diagnostician, it was acceptable to pick and choose what symptoms you would listen to. Pain was the major factor in my presentation of symptoms. Well, I was informed my regular neurologist would take care of my pain and headaches and he would address the “other” issues. Given that he was ignoring pertinent information, he proceeded to diagnose me with possibly Tourette’s Syndrome; stating that I didn’t present with the psychological factors common for that identification, or that I presented with an uncommon form of dystonia. He said he would need to see me again to make up his mind….. Desperate for pain relief, I took the clonadin prescribed. I did sleep better than I had for months, but quickly began experiencing bizarre side effects. My face started pulling to the side, and eyes started rolling back. This wouldn’t last long, but it did startle me. I called and discussed this with the prescribing neurologist’s nurse. I was told to increase the medication. By the end of that week, I was admitted to the hospital for six days due to seizures, which consequently stopped after all of the medications were ceased. I again questioned having the facial muscle and nerve functioning assessed. I was told they might do that type of testing at KU, but he didn’t know. He insisted that I needed to accept the diagnosis of migraines and quit searching for a cause.
Once I was feeling better, I felt I needed a follow-up with my TMJ specialist out of state (September, 2008). I traveled to have an evaluation completed which resulted with being told that he was unable to offer any further assistance. He recommended that I follow up with a specialist regarding my neck pain and back pain, and an ENT. So, once home I scheduled an appointment with an orthopedist. I was told by that doctor that everything was structurally acceptable and I may want to see a physical therapist for the pain. I was also seen by an ENT, whom, was unsure of what was contributing to my facial, throat, and ear pain. Soon, my family doctor referred me to a pain clinic due to the severity of my pain, which by that time was impacting my whole body. The pain specialist trialed various injections in my neck, shoulder, and head. The injections in the occipital nerve did help with the pain on the back and side of my head, as well as, the eye pain.
Despite doctors insisting that nothing else could be done other that trialing various medications, I continued to search for assistance and relief. In October of 2008, I discovered Dr. Raman’s website. I read the information and saw that he performs the facial muscle and nerve testing in his office. I was astounded to find out that the testing, that I had requested was actually available nearby. On my way home from a visit at the pain clinic, I stopped in his office to see if I would be a candidate for treatment. An evaluation was scheduled for the next week. Results of the testing indicated significant problems with the jaw joints and that yes, the muscle and nerve functioning was impacted, too. Dr. Raman explained that the MRI is commonly used to assess the jaw joints, but that it is not sensitive to measuring that structure. The CAT scan performed in his office revealed significant damage. At a follow-up appointment I was fitted with a fixed orthotic over my mandibular teeth to hold my jaw in the correct position. I found immediate relief once the orthotic was placed. I experienced a dramatic decrease in migraines and my other neuralgia pain, face, and jaw joint pain began to decrease, also. In addition, I was referred for physical therapy to address my neck and back functioning.
Due to the progress and reduction in jaw joint, facial, throat, ear pain, and headaches during a three-month period, we determined to progress on to the next level of treatment which is orthodontics to permanently adjust my bite to its proper positioning. I have had braces for nearly one year. Although I am not 100% pain-free, I have experienced an 80-90% reduction in the pain I was once experiencing. I know that I can have a bad day or two and that it won’t turn into a bad couple of months or even longer. I have my life back. I no longer wake each day thinking not if it is going to be a good day, but how much pain will today bring….will it be manageable, or debilitating….will I be able to care for my children, or will I have to send them away…. I am able to enjoy living, my children, my husband, my family, my friends, my career…. I am so thankful for having the ability to live again, to care for my children, and the ability to give my family the mother they deserve.

SUNCT Headache Attack

SUNCT headaches are characterized by bursts of moderate to severe burning, stabbing, or throbbing pain, usually on one side of the head and around the eye or temple.

SUNCT stands for Short-lasting, Unilateral, Neuralgiform headache attacks with Conjunctival injection and Tearing. Neurologists believe that SUNCT is one of the Trigeminal Autonomic Cephalgias.

Autonomic nervous system responses include watery eyes, reddish or bloodshot eyes caused by dilation of blood vessels (conjunctival injection), nasal congestion, runny nose, sweaty forehead, swelling of the eyelids, and increased pressure within the eye on the affected side of head.

According to National Institutes of Health, these headaches are generally non-responsive to usual treatment for other short-lasting headaches. Corticosteroids and the anti-epileptic drugs gabapentin, lamotrigine, and carbamazepine may help relieve some symptoms in some patients. Studies have shown that glycerol injections to block the facial nerves that carry pain may provide immediate relief, but the headaches recurred in about 40 percent of patients studied.

We treated a patient that had a SUNCT diagnosis and also had many TMD signs and symptoms. Once the jaw alignment is corrected with NM orthotic, all of her symptoms improved greatly. So when she had an episode of right face and right eye lid drooping, it felt like a recurrence of a nightmare.

http://www.youtube.com/watch?v=eYA7Mcdk8k0

Since the SUNCT headache attacks have completely gone for a year since beginning NM treatment, I was confident that we can “cure” this attack with Neuromuscular dental protocols. The mandibular condyle can put pressure on the Facial nerve if the jaw moves towards the back.

IF it were an incurable neurological phenomenon, then nothing I did would matter.

In just one hour of Ultra Low Frequency TENS applied in specific locations ( Las Vegas Institute protocol) the symptoms disappeared completely.

http://www.youtube.com/watch?v=AVEsak9kv1Y

More information at www.MidwestHeadaches.com